Finally, some medical news!

So, today was my meeting with the doctor about my diagnosis. There is good news and bad news. The good news is that all of my test results for cancers such as lymphoma and leukemia were negative. The bad news is that I do have what is called Churg-Strauss Syndrome (CSS). This disease comes in three stages and I am in stage two: 1) Early onset asthma; 2) high eosiniphil count (which should only make up about 1% of the white blood cells in the body. When mine go up (when I am not on steroids), they get up to about 50% of my white blood cells; 3) Vasculitis. Since I am only in stage 2, the doctor is amazing and going to do whatever it takes to keep me here and not slip into the third stage when there are more complications. The other good news is that on the spectrum of CSS, I am on the low end and I do respond very well to steroids. I may be on roids for the rest of my life, so he will be doing monthly blood tests and yearly bone density tests, to ensure I am not at risk for more issues, such as osteoperosis, cataracts, vasculitis, heart issues, etc. There is a clinical trial which experiments with immuno-supressants and chemo-therapy related drugs (which would be once a month for the drug therapy/chemo), but he feels I should put that on the back-burner until after M and I have a baby in the next few years. The fear is that since it is a trial, it may mess up any chances of me conceiving or keeping a baby. So, we are okay with holding off on the trial. Who knows, maybe by the time M and I have a baby, there will be another trial, or the drug will have been approved and I can just get a script for the cure...here's hoping. Anyway, thank you for all of your thoughts and prayers today (and always). At least now, we have a diagnosis, and we can figure out where to go from here. I'm a fighter, so here goes!!! xoxo You can google Churg-strauss syndrome for more info from Hopkins, if you have questions.